Hello! my name is Susan Rahn. I started blogging as a way to get my thoughts out of my head and to make sense of this life living with metastatic breast cancer.
Let Me Explain
Everyone is ‘aware’ of breast cancer, but I found out the hard way that there is an incurable form of breast cancer. Metastatic Breast Cancer. When I was diagnosed with Stage 4 Breast Cancer in 2013, I was only 43. My previous mammogram had only been nine months earlier.
Since my diagnosis, I have learned a lot about what it means to have metastatic breast cancer. Through that learning process, I found that men and women with MBC will be in some kind of treatment for the rest of their lives. While early-stage patients found down their treatment, we count up. I didn’t know that about 7% of all the money raised for breast cancer goes to research for metastatic disease. That was a disturbing fact to uncover. Also, up to 30% of people diagnosed with Stage 1, 2, or 3 breast cancer and successfully treated will become metastatic – up to 20 yrs later.
I’ve met and become close to some amazing men and women. I have also had some amazing experiences and participated in a few campaigns that I hope brought MBC into the spotlight. That’s the only thing I wouldn’t change about all this.
I’m a wife, mom, and stepmom. Recently I became a grandmother to a bubbly boy and beautiful girl
I hope you enjoy my ramblings and if you like something you read, smash that like button! I’m also on Twitter, Instagram, and occasionally Facebook.
Hi, I may not have breast cancer but I have advanced metastatic lung disease secondary to primary adenocystic carcinoma of the Parotid. I share you anger at the lack of dollars directed toward research . I am on my 3rd regimen to help lengthen my life. My goal is to see my now 16 year old son off to college Aug/Sept 2019.
Hi, my mom also has breast cancer that has spread to her spine and hips! Just lookin for some major encouragement! And would like to talk with susan if possible, if not, thats fine!
Hi Roger,
Thanks for visiting my blog. I’m sorry to hear about your Mom’s diagnosis. If you’d like to email me at stickit2stage4@gmail.com I’d be happy to help answer any questions you may have.
Best,
Susan