For those of you that dont know me, my government name is Susan Rahn. I’m also on Twitter and Facebook as ‘Stickit2stage4’.
I started blogging as a way to get my thoughts out of my head and to make sense of this crazy terminal illness crap.
I’ve been ‘aware’ of breast cancer since the age of 15. That’s when I had my first needle biopsy after finding a lump. Biopsy was negative but that’s when I learned I had dense breast tissue. Having dense breasts suck for many reasons, some of which are very painful breasts at THAT time of the month and being unable to breast feed beyond 3 weeks because of a double breast infection. I believe I had my first ‘baseline’ mammogram in my late 20’s (felt another lump). Unfortunately, dense tissue makes having a mammogram frustrating because the tissue shows up as white on a mammogram. As does Cancer. Because of this I always have an ultrasound as well. After only 4 mammograms – all of them clear, I ended up with a diagnosis of Stage 4 Breast Cancer in 20131. I was only 43. My last mammogram had only been 9 months earlier. (Ain’t that a slap in the ass?).
Since my diagnosis I learned a lot about what it means to have metastatic breast cancer…..a terminal illness. Through that learning process, that’s still going on, I found that men and women with MBC are like the misfit toys in the world of breast cancer. Very little money raised in the name of BC goes to research, let alone to MBC research. That angered me. A lot. Why are we still full steam ahead with ‘awareness’, ‘checking boobies’ but we are losing the ‘race for the cure’? That’s when I took to Twitter and started to find my voice. I’ve since started a Facebook page dedicated to information sharing, posting medical advances in BC and chronicling my illness.
I’ve met and become close with some amazing women. That’s the only thing I wouldn’t change about all this. It does suck balls that I’ve watched quite a few women die but this is my reality.
I’m a wife, mom and step-mom. Altogether, I have 3 teen boys and an energetic puggle named Bella.
I hope you enjoy my ramblings and if it helps, maybe read at night and you can skip the sleeping pill! Ha!