Category: advocacy

Nevertheless We Persist – Lobby Day 2017

Nevertheless We Persist – Lobby Day 2017

As you my remember, the NY Medical Aid in Dying Act was re-introduced this past January and I traveled to Albany to be part of the Press Conference and to speak with lawmakers so I could share my story about why I am in support of this legislation. You can read that blog here. Although … Continue reading Nevertheless We Persist – Lobby Day 2017

Words Matter

Words Matter

I had a big week last week. It started in Albany. Assembly Bill 2383/Senate Bill 3151, the New York Medical Aid in Dying Act, was introduced for the 2017 legislative session on January 20th and on Monday, January 23rd a Press Conference was held at the State Capitol to formally announce it. I was asked to … Continue reading Words Matter

Patients at Pluta Have a Guardian Angel

Patients at Pluta Have a Guardian Angel

It's very expensive to have cancer. There are scans, monthly labs, Doctor appointments, drugs to fight the cancer and more drugs to help with side effects. It can be very overwhelming and if you're like most people, it can be financially devastating. There are some organizations, such as The Pink Fund, that are available to … Continue reading Patients at Pluta Have a Guardian Angel

Advocacy Stampedes in D.C.

Advocacy Stampedes in D.C.

As a metastatic breast cancer patient and advocate, I try to use my voice in many ways to bring awareness to the fact that metastatic disease is woefully underfunded. I've been lucky in that I've been able to travel to be with friends and other fierce advocates because, let's face it, there is power in numbers.

Before You Post That Meme….

Before You Post That Meme….

​We've barely had time to dip our collective toe into September and the just like the Christmas decorations we see way ahead of schedule, it seems the Pink ooze that is October has already begun. To be perfectly honest, I feel like asking for my high blood pressure meds back (that I finally got off … Continue reading Before You Post That Meme….

Viewpoint with Ken Rosato

Viewpoint with Ken Rosato

  Just a quick follow up post. The interview I did with Compassion & Choices New York a few weeks ago, aired last night. I wanted to share it here for those of you that may not regularly visit Facebook or Twitter. I'm very pleased with how this turned out. Sometimes after editing, an interview … Continue reading Viewpoint with Ken Rosato

The Numbers are Not in My Favor

The Numbers are Not in My Favor

At my last update there was concern over my rising tumor marker: CA 27.29. I had my labs done on Thursday and the decision was made to schedule a PET/CT for August 2nd. The rising numbers coupled with my continued weight loss (I'm averaging about 10lbs a month) and my over all feeling like crud … Continue reading The Numbers are Not in My Favor

A Big Win For Choice

A Big Win For Choice

Today the New York State Assembly Health Committee voted 14 to 11 in favor of the Medical Aid In Dying Act. This historic vote comes less than 2 weeks after the Bill was introduced by Senator Diane Savino and Assembly Woman Amy Paulin. I am very proud to have been part of the beginning process … Continue reading A Big Win For Choice