Patient ✻ Advocate ✻ Blogger ✻ Public Speaker
Category: terminal
I am so sick of hearing people say to me that I'm still here for "a reason" or I've outlived my prognosis for "a reason." If there is in fact "a reason," then please tell me, what the fuck it is. This week has been especially difficult. A close friend of mine who I see … Continue reading What the Fuck Is the Reason?
Would you love me if I burned dinner? Would you love me if I forgot to buy toilet paper? Would you love me if I dented the car? Would you love me if I left Christmas shopping to the last minute? Would you love me if I'd rather stay in on a Saturday night? Would … Continue reading Would You Love Me If….
It's been some time since I've talked about the Brain MRI I had back in May and there was a reason. The biggest reason was that I didn't want to jump to any conclusions or speculate 'out loud' while the two biggest events in my son's life were happening - his graduation from High School … Continue reading And The Verdict Is…….
I should have listened to my gut and stayed in sunny Florida but you know, Adam and Bella needed me. Spring break was uneventful (for the most part) until Wednesday the 22nd. I had my monthly Oncology and treatment appointment and was also looking forward to seeing a friend and fellow Stage 4 patient. Our … Continue reading Trying To Catch A Break
Last week I did something I rarely do but realized I should really do more of - I took a mini vacation. The two days in Albany and the press that followed after took more out of me than I realized. I was exhausted. So, when the opportunity came for me to travel to Florida … Continue reading Solar Powered Florida Adventures
Today I'm making my favorite trip again. *eyeroll* I'm headed down to Sloan-Kettering for another fast and dirty trip for a PET/CT. The last time I updated regarding my health, I was going to see a GI Oncologist at Sloan on September 28th to see if she could unravel the mystery that is me. … Continue reading On the Road Again
We've barely had time to dip our collective toe into September and the just like the Christmas decorations we see way ahead of schedule, it seems the Pink ooze that is October has already begun. To be perfectly honest, I feel like asking for my high blood pressure meds back (that I finally got off … Continue reading Before You Post That Meme….
So, I've been dealing with nausea, weight-loss, lack of appetite and change in bowel habits (diarrhea) since maybe March. No one has been able to figure it out. No one wants to take ownership of it. Not my Oncologist and not my GP. We've just been monitoring it. Nothing stands out in my labs, my … Continue reading As The Stomach Turns
