This page is a list of Resources and links that I can personally recommend as I have either had direct contact with individuals within the organizations, fund raised for or have attended events that were sponsored by the following organizations. This list doesn’t attempt to capture all those available, just those that I have personal knowledge of.
Metastatic Breast Cancer Network
MBCN is a national, independent, non-profit, all volunteer, patient-led advocacy organization dedicated to the unique concerns of the women and men living with metastatic breast cancer, also known as Stage IV or advanced breast cancer.
Living Beyond Breast Cancer
We provide programs and services to help people whose lives have been impacted by breast cancer. Our goal is to provide information, community and support that you can trust, is easy for you to access and respectful of you and your situation. All our resources are carefully and frequently reviewed by some of the country’s leading healthcare experts and informed by people living with breast cancer.
METAvivor is dedicated to the specific fight of women and men living with stage 4 metastatic breast cancer. At the time of METAvivor’s founding, no organization was dedicated to funding research for the disease and no patient groups were speaking out about the dearth of stage 4 cancer research. While more and more people have taken up the cry for more stage 4 research, METAvivor remains the sole US organization dedicated to awarding annual stage 4 breast cancer research.
MET UP is committed to changing the landscape of metastatic cancer through direct action. We protest and demonstrate; we meet with government and health officials and researchers; we support research into metastatic disease; and we speak out against the sexualizing of breast cancer. We are convinced that the deaths of women and men from metastatic breast cancer are a paramount issue, and we pledge ourselves to oppose all who deny the reality of the 522,000 people who will die from metastatic breast cancer globally every year while waiting for a cure to be found.
The Cancer Couch Foundation
The Cancer Couch Foundation is a 501c3 non-profit corporation founded by Rebecca Timlin-Scalera, PhD, breast cancer survivor and neuropsychologist, in 2016 to raise money exclusively for research on metastatic breast cancer (when it spreads outside of the breast to other parts of the body). After her diagnosis in 2015, Rebecca quickly became aware of the dire need for more funding for this stage of the disease, the one that kills you. Although 1 in 8 women will be diagnosed with invasive breast cancer, and 30% of those with early stage breast cancer (Stages 1-3) will eventually be re-diagnosed with metastatic breast cancer (Stage 4), only about 7% of breast cancer research funding is allocated to this stage. While there are thankfully more and more treatments becoming available for metastatic breast cancer, there is still no cure, and the average prognosis remains at 2-3 years. She is on a mission to change those facts, accelerate, and substantially improve treatment and outcomes for those currently living with metastatic breast cancer. Rebecca has carefully selected two of the most promising young scientists in the field, at two of the world’s leading cancer centers, Memorial Sloan Kettering Cancer Center and The Dana Farber Cancer Institute, to fund their studies in this field. The Cancer Couch Foundation is privately funded and volunteer-run. Therefore, 100% of donations and event proceeds can go directly to these two institutions to fund these cutting edge research projects on metastatic breast cancer. Rebecca will personally meet with the scientists and their teams twice a year to get updates on currently funded projects, discuss projections for future studies, and relay the information directly to donors through this website. Furthermore, both institutions have committed to matching funds for these projects donated through this foundation!