Tag: lobbying

And God Laughs

And God Laughs

I should be sleeping. It's 2:33am. I have to be up in four hours. I am in Albany as part of a campaign for New York’s Medical Aid in Dying Act. The campaign, 50 Reasons by Compassion & Choices, highlights 50 stories of real people and their reasons why they support the bill. Its genius. … Continue reading And God Laughs

Nevertheless We Persist – Lobby Day 2017

Nevertheless We Persist – Lobby Day 2017

As you my remember, the NY Medical Aid in Dying Act was re-introduced this past January and I traveled to Albany to be part of the Press Conference and to speak with lawmakers so I could share my story about why I am in support of this legislation. You can read that blog here. Although … Continue reading Nevertheless We Persist – Lobby Day 2017

Advocacy Stampedes in D.C.

Advocacy Stampedes in D.C.

As a metastatic breast cancer patient and advocate, I try to use my voice in many ways to bring awareness to the fact that metastatic disease is woefully underfunded. I've been lucky in that I've been able to travel to be with friends and other fierce advocates because, let's face it, there is power in numbers.

The Day We Died At The Capitol

The Day We Died At The Capitol

I attended a Metastatic Breast Cancer conference back in April in Philadelphia hosted by Living Beyond Breast Cancer.  It was a memorable experience for many reasons. The most notable was that a new movement was born from that conference. MetUp is the brainchild of fellow mester Jennie Grimes. As was the rest of us, Jennie … Continue reading The Day We Died At The Capitol