Tag: stage 4

Just When I Thought I Was Out….

Just When I Thought I Was Out….

Just when I thought I was out, a celebrity died of metastatic breast cancer and I got pulled back in with all the inaccuracies.

Let’s Talk About Bucket Lists

Let’s Talk About Bucket Lists

Bucket lists. They've always made me itch. From time to time I'll hear friends talk about making their list or they will post pictures with a lead in of "Well, I checked this (whatever 'this' is) off my bucket list." I immediately think about what happens when they finish the list or worse; they don't … Continue reading Let’s Talk About Bucket Lists

Advocacy Stampedes in D.C.

Advocacy Stampedes in D.C.

As a metastatic breast cancer patient and advocate, I try to use my voice in many ways to bring awareness to the fact that metastatic disease is woefully underfunded. I've been lucky in that I've been able to travel to be with friends and other fierce advocates because, let's face it, there is power in numbers.

Viewpoint with Ken Rosato

Viewpoint with Ken Rosato

  Just a quick follow up post. The interview I did with Compassion & Choices New York a few weeks ago, aired last night. I wanted to share it here for those of you that may not regularly visit Facebook or Twitter. I'm very pleased with how this turned out. Sometimes after editing, an interview … Continue reading Viewpoint with Ken Rosato

Nope, Not Worried At All

Nope, Not Worried At All

Last I updated, I was headed for a biopsy of my lymph nodes under my left arm and a biopsy of my ribs on the right side where I have had a large hard visible growth that is quite painful. Both procedures were done on the same day and I was home by 2pm on … Continue reading Nope, Not Worried At All

A Very Special Day

A Very Special Day

Today was a very special day. As parents we 'check of' the various milestones our children reach and make mental notes of those that have yet to come. When you have a terminal illness you find yourself playing a kind of 'beat the clock' between yourself and these milestones. Hoping that you'll still be around … Continue reading A Very Special Day

The Best Surprise

The Best Surprise

It's not often I log onto Facebook and get a wonderful surprise. Many times its filled with not so good news about friends reporting on test results or finding out another has died too soon. But today isn't one of those days. Today I found out I was put into the company of some pretty … Continue reading The Best Surprise

Something To Look Forward To

Something To Look Forward To

In April, at The Lowes Philadelphia Hotel in Philadelphia, PA, an organization called Living Beyond Breast Cancer will be holding their 9th annual convention for those living with Metastatic disease. I have decided to go and with the help of a travel/lodging grant I can. Much to my surprise the grants are funded by none … Continue reading Something To Look Forward To